Patients Know Best Reviews 

Very informative and kept me fully informed and updated.Reassuring!

This “Patients Know Best” lark is a nonsense. I have been sent a chart of complicated test data on me, which even with intelligence and good research skills I struggle to understand completely, and without medical training am likely to jump to incorrect conclusions.

A serious disease, stressed to the max that does not consider the patient’s mental health. The human condition is not supposed to communicate with apps, we are not supposed to live this way. How many years taken over a life span, downloading apps that are far too complex & actually don’t work? I have no idea the results of any medical reports because I cannot gain access! Great idea! How much has PKB cost that could have been spent on patient care?

Unable to log on and no one can help,

My first attempt to register my wife and I ended in failure as I had been trying to use a single email address for us both. I spent several hours trying to cancel and re-enter the system.
I decided to contact the PKB support team and the contact, Jo, was very helpful and sent a series of step by step instructions for each person. All fixed correctly
Excellent service.

It was great to get a quick response to my email enquiry. Tarra told me what she needed to solve my query and again she was quick to reply and explain.

What a fantastic service, bloods taken at doctors on Friday, results Saturday, explained and indepth, thank you.

Received an email from a random hospital from some distant part of the UK inviting me to register. The email claimed that this random hospital holds my data. It took 3 phone calls to establish that this is not a scam, but an email was sent to me in error. No respect for GDPR rules. This is concerning as they might hold some medical data.

Some time ago I got an invite to sign up and on paper this seemed a good idea. The reality is rather different.
The hospital trust had suggested I join and so I did. Initially there was the occasional update for me to look at but this was just a repeat of the letters I had received for appointments so duplication.
Having been refused a simple blood test by my GP, I suggested the practice look at Patientsknowbest. 'Never heard of it' both the receptionist and the doctor said.
Nothing much changed and every 6 months my test results were uploaded for me to look at. However, I was still getting a telephone appointment AND a letter telling me the same thing.
Checking the information today I find that 4 of the last 5 test results are missing. But no matter, I have letters with the results.
Since October last year I have had a number of other unrelated tests for a potentially serious condition. This has meant visits to two hospitals within the same trust, for x-rays, for bloods, to see a specialist and fitting recording equipment. There is NO RECORD OF ANY OF THIS TREATMENT.
So it seems most of the hospital trust and the GP either couldn't care less about this facility or have no idea it even exists despite the trust being signed up to it.
2026 is the digital age but I have to rely on a large, bulging paper file of documents containing all my medical history. Complete and utter shambles.

Initially had a problem but e mailed to get it rectified.The following day,my results were available except radiology.

Can’t praise it highly enough. I used to have to wait a week to get test results from the doctor, now it’s mostly the same day.
All my info in one place. Had to give details for a life insurance application recently and I found dates and details in the app.
Shows trends of blood results - useful if like me you have tests regularly (diabetic)

I had a problem downloading a document and Tarra was an absolute star and guided me through the steps to resolve my problem. Thank you Tarra for all your help.

I knew nothing about this ill-named organisation until I received three messages from it after a medical procedure as an out-patient. I was unable to access those messages, having never heard of Patients Know Best. Then I found the security requirements to register were quite beyond the rather limited IT facilities I had. So three hours of my time down the drain and to no real purpose at all, it seems. Why cannot they simply identify me through my GP practice?

Super response. MY GP and the hospital staff were unaware of how to fix the problem. Jo at the help desk sorted it immeditaely

The assistance that I required on my Patient Know Best communication was easily actioned.

I found this website easy to use and intuitive. I had reason to contact the support team as I somehow ended up with two accounts because I changed my email over the years. The support team responded straight away and resolved the issue. This meant a lot to me knowing someone was there to help and not just an automated bot.
I hope it continues to run but it will only work if all the Health Departments use it. At the moment, I am not seeing all my records. I also know some GPs don’t even know what it is.

A really great service and to keep updated by the NHS. It is a one stop shop for your appointments etc

Personal details updated without problem. Great

I think it is just a waste of time. Another 'app you need'....for nothing. First, you must be an accountant, as the info you add has to be exactly like your tests figure. To most people it looks like calculus, unless you are a doctor.

More disturbingly, in places it says 'doctors might not routinely check here, so contact them directly'.

So what the heck is all that work for? It gives a false sense of comfort, making you believe you are doing a lot, but in fact probably is just a waste of time and effort.

When I first created my record, it unfortunately wasn’t connected to a hospital because my trust at the time wasn’t using the service. However, since moving to a new area, I automatically received an email letting me know that my new hospital is now connected to my record.

I’m really happy that this happened automatically, and I’m finally starting to see some of my records. It makes such a difference being able to access this information.

I hope more and more places start using this service, as it’s really beneficial for patients to have easy access to their records.