Everyone so often I get a notification from the NHS App and an email saying I have a new message on Patient Knows Best. I follow the links and most times all it says: [NHS Provider] Updated Inf... See more
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I get emails that are saying your records has been updated but please read any paper letters you get. I then find that an appointment has been cancelled ( with no notification). I get a new appointm... See more
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My first attempt to register my wife and I ended in failure as I had been trying to use a single email address for us both. I spent several hours trying to cancel and re-enter the system. I decided... See more
Fantastic service and collaboration from the PKB team. The app is fantastic, and we chose to partner with them for many reasons, mainly because they are leading the way in the achievement of single pa... See more
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Company details
Information provided by various external sources
Patients Know Best (PKB) is Europe’s largest personal health record platform, enabling patients and healthcare professionals to access real-time health information - anytime, anywhere. As the world’s first patient-controlled personal health records system, PKB facilitates borderless, integrated care wherever the patient needs it. That means any healthcare provider, whether in another area of the country or another part of the world, can immediately access all the information they need to support improved clinical decision making and the best patient care. Everything from test results, care plans, real-time monitoring data and discharge summaries, to the patient’s own data - either uploaded from their journal, wearable devices or using symptom tracking, are all available in one patient record. This also reduces the need for professionals to request background information from the patient’s regular healthcare team. In 2020, PKB became the first personal health record (PHR) to integrate with England’s national health platform - the NHS App. This extends the NHS App’s current features and sharing of GP data, to allow patients to access PKB’s full health and care record and functionality, direct from the national NHS interface. For more information on the features and benefits of Patients Know Best, visit www.patientsknowbest.com or email enquiries@patientsknowbest.com.
Contact info
Cowley Road, CB4 0WS, Cambridge, United Kingdom
- help@patientsknowbest.com
- www.patientsknowbest.com
3.3
Average
640 reviews
No recent history of asking for reviews
This company hasn't invited customers recently, so reviews may not be representative
Replied to 50% of negative reviews
Typically replies within 2 weeks
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Whilst this app could be great
Whilst this app could be great , if hospital staff don’t add the information it is pointless. When I first started using this app all my medications, appointments and outcomes were posted. Now I have cancer diagnosis nothing is being added and I have to rely on the post to receive this information. The app should be automatic and updated according to my hospital record. This way all medical personnel and myself will have access to my records.
2 February 2025
Unprompted review
Reply from Patients Know Best
Thanks for your review, Richard. It’s disappointing that information isn’t being shared with you via PKB, especially when you previously had everything in one place.
We give patients secure access to their health records, but updates rely on healthcare providers sharing the data. Since it sounds like your clinical team isn’t currently sending updates, our support team can look into this for you or contact them on your behalf to find out their plans. Please reach out on the email below, we're here to help!
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
The platform is incredibly useful
The platform is incredibly user-friendly, making it easy to access my test results and radiology reports from the hospital through a secure NHS Login.
One of the standout features for me is the graphical representation of blood tests. It's so helpful to track changes over time, allowing me to stay informed about my health in a clear and visual way. The visuals are not only appealing but also intuitive, making it easy to understand my data at a glance.
Having everything in one place eliminates the hassle of keeping paper copies, which is a huge relief. I highly recommend Patients Know Best to anyone looking for a streamlined and efficient way to manage their health information!
3 January 2025
Unprompted review
Reply from Patients Know Best
Thank you for your sharing your experience! 🌟 It's great to hear you’ve found PKB easy to use, and that the graphs have made tracking your health easier. Having everything in one place can make such a difference, and we’re glad it’s been helpful for you!
Lisa
📧: help@patientsknowbest.com
Patients Know Best
It’s brilliant - it should be everywhere
It’s brilliant - not only could I get all my info, I could see the tests I had and then find out more about why I had had them and what the results meant.
Why aren’t all MY medical records so easy to access - everyone should be using this system.
I was treated at St Richard’s in Chichester and love that I can follow my health journey and look at what tests have been done (and rapidly get the results) but also like that I have then been able to share with other medical professionals I have seen eg my GP to ask relevant questions
19 August 2024
Unprompted review
Reply from Patients Know Best
Thanks for your review! 🌟
It's great to hear that quick access to your test results, and being able to share your PKB record with professionals has been so helpful.
If you need any support with your record, we're here to help!
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Brilliant System, thanks so much
This is exactly what I've been waiting for. To have access to my info and to feel more in control eases the mind greatly. Looking forward to more.link up with the hospital to help me manage my AF treatment.
27 January 2025
Unprompted review
Reply from Patients Know Best
Thank you for taking the time to leave a review! 🌟 We're so glad to hear that having access to your PKB record gives you peace of mind.
Lisa
📧: help@patientsknowbest.com
Patients Know Best
What an absolute load of rubbish
What an absolute load of rubbish. Who has the time to wade through all the information and understand this system. We were logging onto our GP information through Patient Access and then also NHS log in and now another useless disorganised system. We don't want it or need it. We need one simple system that is just NHS. A high percentage of patients are elderly and do fully understand the internet or use a mobile phone. Many people including myself thought this was a scam organisation. Never heard of it and no information from NHS on it. Where does private treatment come into this system. What happens if some of your information is not at your local hospital and not signed up to the system. Do we have to join ? What a rubbish name for an NHS facility. Could we not have just one NHS system called NHS FULL PATIENT RECORD. I hope appointment letters continue to come by post or there will be a lot of missed appointments. People are already confused with appointments being sent by different means.Your local health authority must be paying this company to use it's system. What a waste of money.
14 January 2025
Unprompted review
Reply from Patients Know Best
Thank you for sharing how you feel. I’m very sorry that this has been a frustrating experience for you.
I completely understand your discouragement towards using multiple systems. Advocating for a seamless, joined-up healthcare experience is a core part of our approach. Our social mission is to empower every patient to "know best" by accessing and understanding their health record and deciding who to share it with.
Currently, much of your medical information is stored on paper or within various computer systems that are inaccessible to you, the patient. PKB health records are patient-owned, giving patients more control and the ability to be actively involved in decisions about their care.
PKB brings together information from multiple services (i.e. hospitals, mental health clinics, GPs, private providers) into one secure platform. This helps to ensure you get the best care, avoiding unnecessary tests, appointments, and letters, which in turn, helps the NHS save money. Rest assured that appointment letters will continue to arrive by post unless you choose to read the digital copy.
It’s not mandatory to join, and your data remains safely managed by your healthcare providers, we just provide a secure way for you to access it. Please note that you can use your NHS login account to access PKB if you wish, and we're integrated with the NHS app.
If you’d like support or have any questions, please email us at help@patientsknowbest.com, we're here to help!
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Don't bother
Really hard to sign up- difficult to navigate and can't cancel appointments- total waste of time- Also they may well be mining your data
10 January 2025
Unprompted review
Reply from Patients Know Best
Sorry to hear you’ve had a frustrating experience. Please get in touch with our support team on: help@patientsknowbest.com, we'd really like to help.
Appointments management is available in PKB via our NHS App integration. Not all NHS Trusts are live with this feature yet, but hopefully it'll reach you soon!
In the mean time there are many benefits to accessing your PKB record, have you read our user manual? https://manual.patientsknowbest.com/home
Finally, I want to reassure you that PKB does not control or sell your information. We work with healthcare providers/NHS Trusts to provide a secure patient record platform to help you access your data, and manage your health.
I hope this helps.
Take care and best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Stuart the support agent for Patient know Best
Stuart the support agent for Patient knows best gave outstanding support, help and advice to solve a tricky problem accessing this service
8 January 2025
Unprompted review
Reply from Patients Know Best
Thank you so much for your lovely review, and for taking the time to share your experience 🌟 We're delighted Stuart was so helpful in resolving your issue. Now that you're logged in, we hope you’re finding it useful to access your health record 😊
If you ever need further assistance, please don’t hesitate to reach out - we’re here to help! 💙
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Absolute rubbish
Absolute rubbish. As if working people have the time to go to the doctors surgery, if you happen forget your password. I work 9-5 Monday to Friday and can’t access the surgery unless I take time off work. I can reset my bank account online, I don’t have to go into the bank. Why not medical sites. This service is a total waste of money. I’m a patient and I know best.
2 January 2025
Unprompted review
Reply from Patients Know Best
Hi Dawn,
I’m sorry to hear that you’ve had a frustrating experience.
I’d like to reassure you that you don’t need to visit your GP surgery to reset your PKB password. You can absolutely reset this yourself, online, by answering some security questions.
If your security information isn’t accepted, the local PKB admins at your NHS Trust can help resolve this for you. You should hopefully find the contact details by searching the map in our user manual. However, if you're still unsure who to contact, please email our support team at help@patientsknowbest.com, and we’ll be more than happy to help 😊
You can also log in using your NHS login account details (but you'll need your PKB password the first time you do this)
I hope this helps and that you're able to log back into your record very soon.
Take care and best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Fake review
Test review - this is a fake I am just trying to see what TP does next
13 December 2024
Unprompted review
A waste of time and money!
I have never understood the purpose of Patients Know Best - apart from harvesting our data!
It seems impossible to leave, impossible to log on, and they keep sending me emails about "new documents" which I get from the NHS anyway.
Who is paying these people - the hard-pressed NHS, I suppose
29 November 2024
Unprompted review
Reply from Patients Know Best
Thank you for your feedback. We’re sorry to hear about your experience and would like to clarify a few things.
The emails you receive are sent to let you know that your healthcare team has updated your record. PKB is a patient-controlled, secure, digital copy of the information in your hospital record. It allows you to view updates instantly instead of waiting for letters.
If you’re having trouble logging in or would like to adjust your email preferences, we’re happy to help.
Please get in touch with our support team 📧: help@patientsknowbest.com.
Lisa
Patients Know Best
I can always rely on PKB
I can always rely on PKB to keep me updated with my forthcoming appointment.
15 November 2024
Unprompted review
Reply from Patients Know Best
Thank you, Phil, for your 5-star review! 🌟 We’re so pleased to hear that PKB is helping you to stay informed and manage your health appointments 😊
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Patients Know Best - highly recommended
I have used Patients Know Best for a number of years.if you want to keep records of your medical appointments, prescriptions, reports etc there is no better system. My recent personal experience with Patients Know Best staff in resolving an issue reinforced the efficiency and friendly service which supports the value of the overall program. I can highly recommend Patient Knows Best. The service provided by the staff is second to none.
13 November 2024
Unprompted review
Reply from Patients Know Best
Thank you for your the wonderful feedback! 🌟 We’re delighted to hear that PKB has been so valuable to you, and that our support team were there to provide efficient support when you needed it. 😊
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Honestly, it's pretty great
Honestly, I think it's pretty great, and it gets better all the time. Being able to see my latest results , see graphs of trends, the new 'search for tests' clever drop-down, amazing. Remember when only your doctor had access to this!
I just wish I got my hospital tests in the same place
14 November 2024
Unprompted review
Reply from Patients Know Best
Thank you so much for your lovely feedback, Peter! 😊 We’re thrilled to hear that you’re finding the platform helpful and enjoying our latest test result features. It’s great to see patients like you are benefitting from having more control and visibility over their health information.
Please reach out to us on help@patientsknowbest.com, we'll let you know if your hospital is planning to use PKB in the near future, and we can advise on how you can share your record with professionals individually if you wish.
We’re always working to make PKB even better, so it’s wonderful to know the improvements are making a difference for you. Thank you for taking the time to share your experience!
Lisa
📧: help@patientsknowbest.com
Patients Know Best
A shambles and a farce
A dysfunctional and a cheaply made and designed platform that gets worse as time goes by. Display of results is inconsistent, there is no history of the results, no search function and the appointments, even the very old ones, are crammed between the most recent blood results. That says a lot.
At times, PKB send you an email alert that your data has been updated. You click on the link to see what has happened and it takes you to the personal data page whereby nothing has been changed. The people behind it are unprofessional, clueless and have no interest in the patients and/or their benefit. Their reply, always, is "we are aware of the problem and we are working to fix it". The old problems are never fixed and new problems result in this process. An absolute shambles and an insult to the NHS to have an association with such low quality service.
PS: their uselessness has exceeded all measures. See their reply. Even when they cut and paste they chose redundant information. Low IQ, inability to read and their actions add insult to injury. They are an absolute disaster and a disgrace. NHS do fire PKB and get decent people to start afresh with modern and compatible platform and hire those who are keen to do a good job. We deserve better. Shame on you PKB and big time. You make me sick!
1 November 2024
Unprompted review
Reply from Patients Know Best
Thank you for your feedback. We're sorry to hear about your experience, and I’d like to provide some clarity to help you make the most of PKB.
Notifications Panel: The panel on your homepage shows recent updates to tests, messages, and appointments. To see detailed information for each data type, click the icons below (e.g., “Appointments” or "Tests") to navigate directly to each section.
Test Results: On the “Tests” page, you’ll find a “Latest” view with recent results and a “Trend” view that tracks changes over time. Clicking on a test opens a detailed history, including a graph for visual tracking. You can also use the search bar in this section to quickly locate specific tests.
Email Notifications: PKB notifications inform you of new entries or updates in your record, such as new test results, and include a link to log into the relevant page. When demographic information is updated, an 'update to your profile' notification may be sent. We’re currently resolving a bug that may trigger notifications for some minor backend demographic updates, and we apologise for any inconvenience this may have caused. Demographic updates are limited to one notification per day by default, and you have the option to change your notification preferences (in your profile) to time-sensitive data only, if you wish.
PKB’s mission is to empower patients with access to and control over their health information. We care and we’re here to support you. Please reach out to our support team as we'd like to help.
Warm regards,
Lisa
📧: help@patientsknowbest.com
Take utmost care who you want to have…
Take utmost care who you want to have your medical records. Hovering in the background is an American insurance company waiting to take control. I would never freely give my medical records to a company that is profit generated. My Health Centre released my medical records without my permission even though I had completed a form to keep my medical records at the Health Centre
11 August 2024
Unprompted review
Reply from Patients Know Best
Thank you for sharing your concerns. I’m sorry to hear how unsettling this has been for you, and I’d like to help clarify a few points.
PKB is an independent social enterprise, proud to be a B Corporation, meaning we’re driven by a social mission to empower patients and improve healthcare.
NHS/healthcare providers store and manage patient records as part of delivering care. Often records are stored on paper or in various systems that patients are unable to access. PKB was created to put the patient in control, it's securely hosted, encrypted and only you decide who else can access your record once you've registered.
If you have any concerns, please don’t hesitate to contact us at help@patientsknowbest.com, and we’ll be happy to assist further.
Lisa
📧: help@patientsknowbest.com
Patients Know Best
PKB has really helped me manage my…
PKB has really helped me manage my mums’ care with her as her nominated carer. English is not her first language so being added as her carer in her PKB record, I am able to help her quickly. For example, if she receives any blood results I can see what these are as I will also receive an email notification. I can also view any discharge summaries quickly alongside any clinical letters without having to chase up the hospital or GP for this.
7 November 2024
Reply from Patients Know Best
Thank you so much for your feedback! 😊 It’s wonderful to hear how PKB has helped support you with your mum’s care. Being able to access her information quickly must make such a difference.
We’re so glad PKB is making things easier for you both. It’s exactly why we do what we do. Thank you for sharing your experience! 💜
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Excellent
Very efficient Service, very helpful IT Team, got my system up and running very quickly and asked if there was anything else they could do to help.
29 October 2024
Unprompted review
Reply from Patients Know Best
Thank you so much for the review, Gill! 🌟 If there's anything more we can assist you with, please don’t hesitate to reach out.
Warm regards,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Haven't signed up but really angry with…
Haven't signed up but really angry with my GP surgery for inviting me to sign up to this PRIVATE social enterprise. Trying to access test results/letters from GP but being redirected to this app.
5 November 2024
Unprompted review
Reply from Patients Know Best
Thank you for your feedback, and I’m sorry to hear about your concerns.
Patients Know Best (PKB) is indeed a technology platform with a social purpose, and we’re proud to be a recognised B Corporation, meeting high standards of positive social and environmental performance.
NHS providers rely on partnerships with trusted software platforms to manage health records. The NHS App displays your GP health record, with data flowing from the system used by your GP practice. PKB provides a broader personal health record, including information from hospitals, GPs, mental health services, and data you enter yourself. You can access PKB directly or view parts of it within the NHS App for a seamless experience. Your clinical data is encrypted, and can only be accessed by you, and those authorised by you.
If you have questions about registering or need support, please feel free to reach out. We’re here to help!
Warm regards,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Empowered Care: A Game-Changer for patients
I cannot express enough how transformative the “Patients Know Best” platform was during my adult son’s recent hospital stay. Having real-time access to his blood results and written reports allowed me to process information effectively and truly understand his care. It created an environment where everyone worked together as a team, sharing responsibility for my son’s health.
At both Worthing and Bart’s hospitals, this system completely changed my experience. I no longer had to rely solely on doctors for updates, as I could check the information myself, alleviating some pressure from the medical team. This not only gave me a clear understanding of my son’s condition but also allowed me to witness when the medications finally started to work the positive changes in his blood results immediately, rather than waiting for the next day’s ward rounds.
Overall, “Patients Know Best” made a significant difference in our journey, keeping everyone on the same page and empowering me as a caregiver. I highly recommend this platform for any patient or family navigating their own or a loved one’s hospital care.
9 July 2024
Unprompted review
Reply from Patients Know Best
Thank you so much for sharing your experience, Kerry 🌟 It’s wonderful PKB had such a valuable impact on your journey, helping you stay informed and connected during your son’s hospital stay. Stories like yours are why we’re here—to empower patients and carers with meaningful access to health information 💙
Warm regards,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Appalling !
Appalling !! as a renal patient the information given does not give the time the information is recorded patient access was a much better programne this is a waste of time
25 October 2024
Unprompted review
Reply from Patients Know Best
I’m sorry to hear that you’re finding PKB difficult to use, Raymond.
Timestamps are available within your record, such as when a test was taken, and when test results were added. If you’re having trouble locating this information or if anything seems unclear, please reach out to us at help@patientsknowbest.com—we’d be happy to assist and help make PKB work better for you. Please also take a look through our user manual: https://wiki.patientsknowbest.com/space/MAN
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
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