Everyone so often I get a notification from the NHS App and an email saying I have a new message on Patient Knows Best. I follow the links and most times all it says: [NHS Provider] Updated Inf... See more
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I get emails that are saying your records has been updated but please read any paper letters you get. I then find that an appointment has been cancelled ( with no notification). I get a new appointm... See more
Company replied
My first attempt to register my wife and I ended in failure as I had been trying to use a single email address for us both. I spent several hours trying to cancel and re-enter the system. I decided... See more
Fantastic service and collaboration from the PKB team. The app is fantastic, and we chose to partner with them for many reasons, mainly because they are leading the way in the achievement of single pa... See more
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Company details
Information provided by various external sources
Patients Know Best (PKB) is Europe’s largest personal health record platform, enabling patients and healthcare professionals to access real-time health information - anytime, anywhere. As the world’s first patient-controlled personal health records system, PKB facilitates borderless, integrated care wherever the patient needs it. That means any healthcare provider, whether in another area of the country or another part of the world, can immediately access all the information they need to support improved clinical decision making and the best patient care. Everything from test results, care plans, real-time monitoring data and discharge summaries, to the patient’s own data - either uploaded from their journal, wearable devices or using symptom tracking, are all available in one patient record. This also reduces the need for professionals to request background information from the patient’s regular healthcare team. In 2020, PKB became the first personal health record (PHR) to integrate with England’s national health platform - the NHS App. This extends the NHS App’s current features and sharing of GP data, to allow patients to access PKB’s full health and care record and functionality, direct from the national NHS interface. For more information on the features and benefits of Patients Know Best, visit www.patientsknowbest.com or email enquiries@patientsknowbest.com.
Contact info
Cowley Road, CB4 0WS, Cambridge, United Kingdom
- help@patientsknowbest.com
- www.patientsknowbest.com
3.3
Average
640 reviews
No recent history of asking for reviews
This company hasn't invited customers recently, so reviews may not be representative
Replied to 50% of negative reviews
Typically replies within 2 weeks
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I wrote earlier under 'Take Note'
I wrote earlier under 'Take Note'. I just wanted to let readers know I have been informed by my Health Trust my record has been deleted by PKB. I have no way of knowing that this has actually happened, I just have to take their written word of this action.
31 May 2025
Unprompted review
Not fit for purpose
Absolute rubbish. In the past I foolishly registered with this excuse of a system. The email address I used is now defunct. I have changed it many times to my current email address and PKB changes it back to the old one every time. Contacting the "help" desk about this merely results in buck passing. Shoddy and best avoided. After all why bother when your medical centre has ALL the information you need. A total waste of time.
Edit: your reply simply illustrates my point regarding buck passing. IF you provide transparency then surely you can arrange the change of email address, since it is in your best interest to do so as users of my data. As I have mentioned, I neither need or want your services, please remove my details.
21 May 2025
Unprompted review
Reply from Patients Know Best
Sorry to hear this, Paul. PKB is synced with your NHS record, giving you visibility of the details that your care teams have on file. If an old deleted email address re-appears, it’s because it’s still stored in your NHS record.
If any of your information is out of date, it’s important to update it directly with your GP or hospital. Any changes they make will then be reflected in your PKB record.
We know it can be frustrating to see outdated details; our aim is to give you transparency, so you can address any discrepancies and stay better informed about your health.
If there’s anything else we can help with, please don’t hesitate to reach out.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
No useful info, bring back NHS app
I used to be able to get information off the NHS app, eg test results, prescriptions (current and past). The PKB site is devoid of all useful info and just a puff site (full of hot air). I have no problem using private contractors, I just need something that works.
15 May 2025
Unprompted review
Reply from Patients Know Best
Thanks for your feedback. Just to reassure you, the NHS App is still very much available. The data you've accessed previously is part of the GP health record. If you've recently selected “Get my GP data,” in PKB, this will have started the process to pull that same data into your PKB record, but it will not remove it from your NHS app.
PKB is fully integrated with the NHS App, and through the service we provide, patients can also access hospital test results, correspondence, and more, all from within the app.
I know it’s disappointing if your PKB record isn’t showing all the information you were expecting. Some NHS teams are sharing a wide range of data types already, while others are taking a more phased approach. Please do reach out to our support team, we’d be happy to check what’s being shared by your healthcare providers and help you get the most out of your record.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Utterly pointless.
Utterly pointless.
I signed up after a prompt from my NHS Trust. There’s nothing there! Even less than the (patchy) NHS App if that’s possible. No appointments (past or future) no test results, no referral letters. It seems I have to created the content (no doubt so the App owner a sell it).
Don’t bother! It’s just another chancer trying to make a buck or two off the inadequacies of the NHS App.
9 May 2025
Unprompted review
Reply from Patients Know Best
Thanks for sharing your feedback, Mark. We understand it can feel disheartening to register and not immediately see the information you’re expecting.
Just to clarify, PKB is a secure platform that allows your NHS providers to share a full range of health information with you. Some providers have fully integrated systems that are regularly sending all data types, while others are releasing data gradually.
Your NHS Trust invited you because they already have a record for you in their system, and now that you're set up, you'll receive updates when new information is added. If you’re under the care of other trusts, they may also choose to share your data with you through PKB. We’d be very happy to check what’s available and what’s planned at your NHS trust(s), please reach out to our support team.
If you’re registered with a GP in England, you can add your GP record into PKB by logging in with NHS Login and clicking ‘Get my GP Data’ to start this process.
PKB was well established by the time the NHS app was introduced in 2020, and we're proud to be the first personal health record (PHR) integrated with it. As a social enterprise and certified B Corp, we’re committed to empowering patients with access to the information needed to better understand their health.
Best wishes,
Lisa
help@patientsknowbest.com
Patients Know Best
This is a completely useless service
This is a completely useless service. I registered years ago and there is not a single piece of information about my health in the entire app. A total waste of money
1 May 2025
Unprompted review
Reply from Patients Know Best
I’m really sorry to hear you’ve been left disappointed, especially as the service you're looking for is exactly what our platform is here to facilitate. The data you see in your record depends on what your provider(s) have chosen to share so far. We want every patient to access to a copy of their full health record, and it’s something we’re constantly working towards in partnership with the NHS and other healthcare providers.
I can see you've also contacted our support team, thank you. We've reached our with further information on how to check what your specific NHS Trust is sharing through this service.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
This site has shut me off from my NHS…
This site has shut me off from my NHS App. Unable to access important information
17 April 2025
Unprompted review
Reply from Patients Know Best
Hi Peter,
It seems you tried to view your PKB record from within the NHS App, but couldn’t remember your password, and just to top it off, you had trouble resetting it too. I’m so sorry for the hassle, that must have been very frustrating.
Thankfully, I can see you raised a support ticket, and with help from your NHS team, you’re now back up and running. The good news is that you only need to enter your PKB password once in the NHS App to link your accounts, so things should be much easier from now on.
If there's anything else you need, please get in touch, we’re here to help!
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
WONDERFUL SERVICE/SYSTEM!
This is a wonderful service. I had a few technical problems my end - but Sarah and Stuart were simply amazing navigating me through a few issues I had registering with Patientsknowbest. They offered phenomenal clear instructions and showed such compassion and patience too. With the latter help of my amazing Doctors Practice I am now fully registered and benefitting from this practical resourceful service. Sincere thanks to you all - you are simply the best!
4 March 2025
Unprompted review
Reply from Patients Know Best
Thank you for taking the time to leave a review! I’m so glad our team were able to help you through the registration process and that you’re now benefiting from your PKB record.
If you ever need any further support, we’re always here to help.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Pretty disappointing
Pretty disappointing. Been using for a little while and all it does is let me see appointment letters that I get by email anyway. No results visible and nothing else either. Pretty useless and I can’t see myself using it much longer. Maybe it the way the Trust I am with has set it up, but it seems like a waste of time and money. My GP system lets me see a whole lot more.
2 April 2025
Unprompted review
Reply from Patients Know Best
Thank you for sharing your feedback, Andrew. I’m sorry you’re not seeing much of your hospital data yet. You're correct that the information you see depends on what your NHS Trust decides to share, and whilst many are sharing test results, appointments etc, others are releasing data at a more gradual rate.
If you're an NHS patient in England, you can now retrieve your GP data into PKB too, storing it alongside other health records in one secure place. Log into PKB using your NHS login account, and click 'Get my GP data' to start this process.
We’re here to help so please feel free to reach out if you’d like any support with using your record.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Got there eventually!
After a frustrating few months of being unable to set up a PKB account and receiving several automated responses which didn’t help, I eventually received a personal reply from Stuart. He has been exceptionally kind and patient and was able to take me through the process of setting up and accessing a new account.
I can’t thank him enough.
31 March 2025
Unprompted review
Reply from Patients Know Best
Thank you so much for your kind words, we’re really glad to hear that Stuart was able to guide you through registering for your PKB record 😊
If there’s ever anything else you need, feel free to reach out to us anytime.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Leave me alone!
I’m a bit confused why a private company is requesting to have my personal information and keeps sending me message after message that are so akin to scam phishing emails it’s unreal. This is just another step towards our new corporate for profit NHS.
27 March 2025
Unprompted review
Reply from Patients Know Best
Thanks for your feedback and sorry to hear of your concerns. NHS providers use many digital or paper-based systems to store medical records, most of which are not visible to the patient. Your NHS provider is using an NHS-approved, patient-controlled platform (Patients Know Best) to give you transparency over your own data, to help manage your care.
Please rest assured that we're not asking for information from you. Your healthcare providers remain in control of your health record data, we're simply providing a secure gateway for you to access and manage it yourself. Data is encrypted in storage and in transit, and PKB are not permitted access to your record. Only you (and the clinicians/carers that you choose) can view your record.
Please reach out to our team if you'd like support.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Absolutely terrible
Absolutely terrible. Difficult to access, difficult to navigate, no information of any value.
26 March 2025
Unprompted review
Reply from Patients Know Best
Hi Geoff,
I’m really sorry to hear about your experience. You can access your record using your PKB email and password, or with your NHS login account (if you're in England). If you run into any problems with resetting your password, the PKB admin team at your hospital can help you with this. Please contact our support team, we'll be happy to point you in the right direction.
I understand it's disappointing if there's not much data in your record yet. The information is shared by your healthcare providers. Once we know which team(s) you’re under the care of, our support team can advise on what you can expect to see in your record now and in the future.
If you're registered with a GP in England, it is now possible to retrieve your GP data into your PKB record: https://wiki.patientsknowbest.com/space/MAN/4143251489/GP+data+for+any+adult+in+England
Please don’t hesitate to reach out to us at help@patientsknowbest.com.
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Empowering and Transformational
I worked with medical students who were learning how to use Patients Know Best and I was surprised by how effective it was. I didn't think that communicating by email would be at all satisfactory compared to face to face meetings. However there were some unexpected benefits. In setting out my written discussions with the medical students I developed a clearer understanding of exactly what was causing me problems and I was able to identify issues which were easily solvable. Also I thought there would be no development of empathy in communication by email was this was not a barrier to an empathetic approach from the students. I found their advice very helpful.
8 May 2024
Unprompted review
Reply from Patients Know Best
Thank you so much for the review 🌟 It’s great to hear communicating via PKB afforded you the space to reflect, find clarity, and have more meaningful conversations about your health. That’s exactly the kind of empowered experience that we aim to support.
Take care,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Involved in the conference Rewire.
Involved in the conference Rewire.
An outstanding team - knowledgeable,supportive and caring to patients.
I use this helpful app to deal with renal failure diagnosed 6 months ago.
I can easily access and track my blood results within 24 hours of being taken which helps me maintain control of my condition.
18 March 2025
Unprompted review
Reply from Patients Know Best
Thank you so much for taking the time to leave a review 🌟 We're really glad to hear that PKB is supporting you in managing your condition and helping you stay informed.
Wishing you all the best, and please don’t hesitate to reach out if you ever need support.
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Very poor
Very poor. Tried using on my phone(as it’s an app) and can hardly read it. I have excellent eyesight. Spent ages going into each folder (why so many!?) and found nothing. Waste of time!!! Why do we need the nhs app and this app?!!
22 March 2025
Unprompted review
Reply from Patients Know Best
We’re sorry to hear this. PKB is a web-based app, designed to work just as smoothly on a mobile as it does on a computer. If things aren’t displaying properly, we’d really like to help get that sorted.
Depending on your area, you can also access your PKB record from within the NHS App. This integration offers patients a fuller view of their care, beyond their GP data, including hospital test results, clinic letters, secure messaging, and more.
Your healthcare providers decide what data to share into your PKB record and when. Whilst some are sharing all data types and using PKB's full functionality, others are taking a more phased approach. Please reach out to our support team on: help@patientsknowbest.com. We can help with your display issue and check what you can expect to see in your record in the near future.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Doesn't show all my test results
Doesn't show all my test results. Claims that local hospital doesn't release them. Therefore not much use.
18 March 2025
Unprompted review
Reply from Patients Know Best
Thanks for sharing, Martin. We understand it's disappointing when certain data is not yet available in your record.
While PKB provides the secure platform, it's down to each healthcare provider to decide what data to share and when. Some are already sharing everything with their patients, others are rolling it out in phases.
We’d be really happy to check what’s expected in your area and let you know if more data is planned, please drop us an email.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
This site is terrible
This site is terrible. I keep receiving messages saying I have messages on PKB. The only time recently that there was indeed a message there for me I found it was a questionnaire on Covid approximately 3 years out of date! I think my most recent several messages have simply been reminders to complete it and (before those) a message saying it had been withdrawn! My husband has similar issues. If we had a choice we wouldn’t go near this site.
17 March 2025
Unprompted review
Reply from Patients Know Best
Sorry about the confusing messages, Moira. Unfortunately, a clinician from Imperial sent an old questionnaire out to patients in error. This has since been removed and steps have been taken to ensure this doesn't happen in future.
We always ensure patients are notified regrading time sensitive updates to their record. We also send notifications for non time-sensitive updates such as changes to demographics or test results. These are limited to one per day, or they can be toggled off via notification preferences in your profile settings.
If you’re still facing problems with your notifications, or need any support with using your record, please get in touch with our support team, we’re here to help 💌
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Patients know Best is a great platform…
Patients know Best is a great platform for all of your health related information to be in one place.
It helps manage your appointments by having access to them at any time, see test results, assessments and care plans so I no longer need to worry about that bit of paper I got at my hospital appointment with instructions on how to help when you aren’t feeling your best.
I can add my own stuff in too, I can upload documents and add other appointments.
Not only that but I can share my information with other people, so if my husband or family need to see my results or care plan it’s easy to share with them knowing my information will always be safe and secure, I can choose who I share with and can take away sharing rights at any time if I change my mind. I can share things with my doctor or hospital consultant if they don’t have access to them on their system too.
I really like being able to see all of my information from different hospitals and doctors all in one place.
I can see a library of things my care teams want to share with me, like a hospital map for my appointment or a leaflet and video that is about my care, it’s really useful knowing the things in there are about my conditions and are right for me so I don’t have to use Google and potentially get it wrong.
15 March 2025
Unprompted review
Reply from Patients Know Best
Thank you for taking the time to leave a review ⭐
It’s great to hear that you’re using PKB to manage your health, stay organised, and share information confidently with the people who support you.
If you ever need help or have suggestions, we’re here to help.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Love my PKB record
Love my PKB record! I get my appointment letters in PKB so quick because hate getting paper letters through the post. That has to be saving the trust money too? It was also easy to register using my NHS app login. A happy Helen.
7 March 2025
Unprompted review
Reply from Patients Know Best
We’re so glad to hear you’re finding PKB useful. You’re absolutely right, digital letters can save money for the NHS by reducing the cost of printing and postage.
Thanks for your feedback 🫶
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Thank you for providing such a unique…
Thank you for providing such a unique solution which has enabled me to gain access to my elderly mothers blood results (and mine) and support her journey to better health. It’s also great how I can access PKB from the NHSApp!!
I have to say some of these reviews highlight people’s lack of understanding and ill judged speculation of your mission. It’s very clear to me that you provide the software not the data in it, in the same way Bill Gates provides outlook but doesn’t control the emails you receive or administer the system. I don't see people complaining to Microsoft if the hospital doesn’t email them!
I have also read the patient and clinician stories on your website site, wonderful. You should share them here in your responses to the doubters.
I think our hospital plans on sending in more soon. All good from us!
11 March 2025
Unprompted review
Reply from Patients Know Best
Hi George 👋
Thank you so much for your kind words. We're so pleased to hear PKB has helped you access your own results and support your mum’s care. You're right, PKB provides the platform, while healthcare providers manage the data that’s shared. We really appreciate your thoughtful take 😊
It’s great to hear PKB is working well for you and your family. If you ever need support, we’re always here to help.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
The benefit of using PKB
Although relatively new to PKB I’m finding the service immensely helpful. I frequently need fast access to various test results and PKB enables me to do just this. Reading notes after surgery is reassuring and a useful tool for reminding one of physio exercises. Very beneficial.
14 March 2025
Unprompted review
Reply from Patients Know Best
Thank you for the review! 😊 We're really glad to hear that you're finding PKB helpful, especially when it comes to quick access to your results and supporting your recovery.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
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